Showing posts with label normalization. Show all posts
Showing posts with label normalization. Show all posts

Wednesday, January 16, 2013

Wednesdays with Dorothy: Finding Domestic Harmony


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When I was in graduate school in California, one night I happened to see the TV movie, “Like Normal People.” It was a true story based on the book by the same title by Robert Meyers. Meyers tells about his brother, Roger, who is mildly retarded and who falls in love and marries Virginia who also has metal disabilities.  The movie portrays the struggles faced by Roger and his family as they try to deal with his disabilities and it highlights attitudes that existed in society back in the 1970s about romance in regard to people with developmental disabilities. (You can view a scene from the movie that presents this romantic struggle here. A newspaper article about the real life couple can be found here).

I was very moved by the cinematic portrayal that I saw, having no idea that five years down the road I would be working with people with developmental disabilities.  At the St. Andrew’s Foundation, we based our habilitation programs on Wolf Wolfensberger’s concept of normalization, meaning that we tried to allow each resident to live as independently as possible and to enjoy the normal routines and rhythms of life. Forming romantic relationships and domestic partnerships is part of the normal rhythm of life.  Dorothy, by the time I came to know her, had settled into what seemed to be a happy routine living by herself in her apartment. When we had discussed her life at Partlow, I had asked her if she had any boyfriends there.  Later when we were talking about her life in the community, I asked her if she had ever considered getting married once she had left the institution. The story she told had all the drama and humor one would expect when recounting a romantic relationship.

Dorothy sitting on her front porch
“There was a time when I thought about getting married.  When I met up with Elmus, I thought he was a real distinguished gentleman. I come to find out a couple of years later what kind of distinguished gentleman he was. He wasn’t nothin’ but a drunk, and all he wanted was money and whiskey and whatever. He stayed with me one night. He slept in the other room [when I was still at the group home]. They found out about it and told him he couldn’t stay there, that that was under the Mental Health Authority.

He said he had been at Bryce Hospital. I met him when I was at ORC (Occupational Rehabilitation Center).”

“I thought about getting married and then I thought, well fitter, if I wound up marrying somebody and they care nothing more for you than anything, what good would that do?  So Elmus, he got mad and broke up with me. I wouldn’t let him have a twenty dollar bill. He ended up marrying Rebecca.  Later on, he claimed that him and Rebecca didn’t have no place to stay. They came down here and wanted to stay with me and I wouldn’t let ‘em. He and Rebecca got married and had their wedding reception at the old parish hall.  Rebecca wanted Elmus to tote her across the floor [threshold], and he couldn’t even hardly pick her up. One of her shoes fell off her foot. They had got married down at the courthouse. He was in his old work clothes and she got married in an old sweatshirt and a pair of blue jeans. I didn’t go to their wedding, but I went to the reception.

“Later on Elmus told me, 'I married Rebecca and she don’t even know how to cook or clean or nothing else.'  I told him well he made his own bed, now sleep in it. And I couldn’t marry him no how, if I had they would’ve stopped my check, I reckon. Later on, I was glad and thankful that I wasn’t the one that married him.” 


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Dorothy had talked before about preferring to live by herself rather than sharing space with a roommate. She seemed to be one who had discovered that her own domestic happiness came with being single.  Next week we will hear Dorothy talk about some of the frustrations she encountered living on Birmingham's Southside.

Inside her apartment on her way to a party

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Wednesday, December 19, 2012

Wednesdays with Dorothy: Activities in the Community


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The group homes at St. Andrew’s Foundation offered residents coming out of Partlow State School a place to find a new life for themselves. They had a real house in a real neighborhood. They had opportunity to learn household skills and a chance to gain some work skills. Some parishioners at St. Andrew's may remember Cecil Cruise who lived at the group home and later moved into a supervised apartment. Cecil was an acolyte at St. Andrew’s Church. He took the bus each day to Brookwood Mall where he worked at Jobe Rose Jewelers for many years. Before coming to St. Andrew’s Foundation, Cecil had known nothing but institutional life. He had lived in an orphanage from infancy until his admission to Partlow during childhood.  The Rev. Francis Walter, in his recollections of the St. Andrew’s Foundation, related a very touching story  about how Cecil influenced yet another life and in his own way you could say that Cecil expanded the ministry of St. Andrew's.

The goal of the St. Andrew’s Foundation was to enable its residents to live as independently as possible and to enjoy the normal routines and rhythms of life as set forth in Wolf Wolfensberger's concept of normalization. Dorothy Burdette and Cecil Cruise were among the first to come out of Partlow State School to St. Andrew’s.  In my conversations with Dorothy, she was eager to tell me about the time she spent learning to live and work in the community.  


Today I am sharing some of Dorothy’s memories about learning opportunities and recreational events while she was living at the St. Andrew’s Foundation. Some of the points Dorothy makes here appear to be repetitive because I compiled her recollections from several different conversations.


"At the group homes we were able to go out to the movie theater. I went with Cliff and saw Song of the South. That’s about uncle Remus and Brer Rabbit. And then we went and saw Fantasia. One time we went to see Private Benjamin – Goldie Hawn played in that one. I haven’t been to see a movie in so long now. When we were at the group home they took us out to see One Flew Over the Cuckoo’s Nest. That one kind of reminded me of life at Partlow."

"Cliff and I have been friends, I reckon 25 years, and he said that I was the best friend that he had ever had. I really really like to make friends with anybody. I like to meet folks and make friends if they want to be friends.  I met Cliff when I used to go downtown to Adult Basics. Adult Basics was a place where they teach you to read and write.  They tried to teach me how to do arithmetic, but I still couldn’t get nowhere with that. I went down there a good little while. Sometimes we would take the bus down there, and sometime Harry would take me – I liked to go with Harry.  Then I met Cliff. He started teaching at Goodwill and Margaret Maynor was my teacher, I don’t know where she’s at now, and then she turned me over to Cliff, and that’s how I met him.  One time I wanted Cliff to bring me home, I lived at 1116, and he had to go pick up his mother, I think at daycare. He told me that Evelyn was going to take me home. Evelyn kept asking me where I lived and I got aggravated. I said, “Evelyn! I live in a yellow house on Southside, 1116!” I yelled out at her before I even thought of myself. She finally found it.  I don’t know whatever happened to her."    

"I had a little job at Goodwill for about three months, but I didn’t like it.  They put me on one of those jobs sorting out nuts and bolts. I didn’t like that. Then they put me on coat hangers – straightening out coat hangers. After that they moved me to the ironing room, ironing clothes. I liked the ironing room.

"And then there was Occupational Rehab. I went there for about three years and then my time ran out. It was down on 16th avenue. I started going downtown to that class. Sharon and Cliff were our instructors. I stayed friends with Cliff all these years."

"I used to work with Erskin Lewis when he worked at the church. We’d go to St. Stephen’s and downtown to the Carpenter House and over in Mountain Brook to Randolph Realties and all them things. We’d clean houses and offices, and down at the church we’d always clean the recreation hall and the bathroom.  My time was up, and I never did go back no more. Virginia Sherrer kept working there, I haven’t seen her in years and years."

"The hardest part, once I got in the group home, was that I wanted to go out by myself and they wouldn’t allow me to be out by myself. I was wantin’ me a little house somewhere. I thought sure I could find one. I was over there [in the group home] for several years.


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Next week: Adventures in Shopping!

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For additional Reading:


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Wednesday, November 28, 2012

Wednesdays with Dorothy: Moving into the Community

(This is part of a series. For Table of Contents go here)
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Dorothy Burdette
Photo taken near
the time she left Partlow
“I really enjoyed getting out of that place [Partlow] and coming down here. They were going to send me to Eufaula, but I’m glad they didn’t – I’m glad I come down here [to Birmingham].

We had to take Personal Hygiene when I was in Thomasville, and I mean it was something else. You had to get up, take a shower and wash your hair – then you had to pick out a nice dress and iron it before you put it on. You had to brush your teeth and they’d check your fingernails. I mean they really checked you out! Then we went to Home Ec. And that’s how I learned to cook when I was in Thomasville. They taught us how to keep house. They didn’t teach none of that at Partlow, they wouldn’t even show us how to use a can opener.

I was at Thomasville about a year to learn how to do things at home like iron and do laundry. They had a washer and dryer in the home where we were. I was 44 years old when I came to Birmingham to live at the group home at St. Andrew’s Foundation on April the 8th, 1975.”

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I would like to digress briefly from Dorothy’s story to share some of my personal knowledge of the St. Andrew’s Foundation. It was a happy surprise when I came to St. Andrew’s Episcopal Church in 1984 and subsequently discovered the St. Andrew’s Foundation group homes. When I started working there, my first job was as a live-in home coordinator. During that time I experienced a shift in my understanding of life and a change in the way I viewed the world around me. Everything from politics to spirituality was affected by my experience of sharing life with people with intellectual disabilities. I would later learn that the renowned Catholic priest and writer, Henri Nouwen, experienced a similar path during the last ten years of his life.

Philosophical Beginnings

After coming on board at the St. Andrew’s Foundation, I began to learn more of its origins in my conversations with Rev. Francis Walter, executive director and founder. Francis talked about how he had been involved with the civil rights struggle in the 1960s. As his work in that field was winding down, some nuns told him about a different avenue for civil rights that they were learning about in the L’Arche Community founded by Jean Vanier.  It was at the very time that the federal courts had ordered Partlow State School to deinstitutionalize residents who were capable of more independent living and the State Department of Mental Health and Mental Retardation was soliciting help in providing community based group homes for institutional residents to move to.  

What Francis Walter may have seen in the L’Arche community is probably best described by their own stated philosophy: “At the heart of L’Arche communities are relationships between people with and without intellectual disabilities. A respectful relationship between people who treat each other as of equal value provides security, allowing for growth, personal development and freedom to become more fully the people we want to be. Most importantly, mutual relationships foster the acceptance of each person as a unique and valuable individual, whatever his or her abilities or disabilities.” (1)

The upshot was that the nuns went to Mobile, Alabama to form a L’Arche community and  Francis Walter was inspired to create a place where the mentally handicapped could come and learn to live a more normal life, based on some of the principles exemplified by Jean Vanier.  Homes were acquired in the neighborhood near St. Andrew’s Church, and a charter was organized for the establishment of the St. Andrew’s Foundation.

Harry Hamilton Remembers the Early Days

Harry Hamilton was Francis Walter’s right-hand man for years at St. Andrew’s Foundation. He was the first Program Director and eleven years later became Executive Director when Francis resigned to become rector of St. Andrew’s Episcopal Church. Harry recalls that “Francis made the decision to speak to the Department of Mental Health about operating group homes after hearing a public service announcement on the radio while on the road between Montgomery and Tuscaloosa in late 1973. His work with the Freedom Quilting Bee had come to an end, and he was familiar with Wyatt House in Tuscaloosa (Alabama's first group home). He was also aware that the Episcopal Diocese owned some old Victorian homes within walking distance of St. Andrew's Parish, so he spoke with the Rector, Maurice Branscomb, and the Bishop and then spoke with Department of Mental Health in Montgomery. All agreed to the arrangement and he signed his first contract with DMH in February of 1974.”

Harry began as Program Director at the St. Andrew’s Foundation in May of that year. He tells of how they began screening residents from Partlow and that the first ones moved in to the new group homes in the Fall of 1974. “From the beginning,” according to Harry, “Francis Walter’s intent was to take advantage of the fact that the homes were in walking distance of the church so that it could become the hub of a community for folks who would need considerable support in adjusting to life outside an institution. And that is exactly how things worked out. The church, also the location of our administrative offices, was an easy walk from the homes, as were grocery stores, pharmacies, the bank, and the bus stop. It was not without obstacles, but for many years this little community worked just as intended and thrived on Birmingham's Southside.”

Harry also recalls his first meeting with Dorothy Burdette: “After about a year of taking residents only from Partlow, we began screening people who had been moved from Partlow to Thomasville Adult Adjustment Center (an old Cold War radar site in our front line defense against a Cuban missile strike). Dorothy was among the first people screened from there. When Edsel Massey and I went down to pick her up we arrived late in the day and spent the night at the Jefferson Davis Motel, where Dorothy happened to be in vocational training at the time. So we had a chance to ask her supervisor a bit about her before actually meeting her the following day. Dorothy often talked about that first meeting and took pride in the fact that her supervisor hated to see her go. She also liked to tell the story of how she misunderstood Edsel's name as "Ediker" and she laughed with each retelling as if it was the first time.” (2)

The Concept of Normalization

Harry Hamilton may not have been present on the day of creation, but he arrived very soon on the scene and was instrumental in the formation of the unique training and habilitation community that characterized St. Andrew’s Foundation. Under Harry’s guidance, the training programs were put into place that would seek to create a normal community life for people who had endured institutional life for years. The underlying principle for the work at St. Andrew’s Foundation was normalization as set forth by seminal thinker and advocate, Wolf Wolfensberger. 

Wolfensberger was Director of the Training Institute for Human Service Planning, Leadership and Change Agentry at Syracuse University in Syracuse, New York until his death in 2011 at the age of 76. He was a strong academic who greatly influenced the field of mental retardation and social services through such writings as The Principle of Normalization. Normalization has been described as “the acceptance of people with disabilities, with their disabilities, offering them the same conditions as are offered to other citizens. It involves an awareness of the normal rhythm of life – including the normal rhythm of a day, a week, a year, and the life-cycle itself. It involves the normal conditions of life – housing, schooling, employment, exercise, recreation and freedom of choice. This includes ‘the dignity of risk’, rather than an emphasis on ‘protection’.”(3)  Part of the dynamic of Wolf Wolfensberger’s work and achievement was that he drew inspiration from Jean Vanier and was involved in establishing the L’Arche community in Syracuse.

So it was a convergence of civil rights, a court order, and the spiritual/ philosophical insights of Jean Vanier that brought about the experiment that was the St. Andrew’s Foundation on Birmingham’s Southside. Next time we will hear more from Dorothy about her experiences there. As her story unfolds, we will also hear from Father Francis Walter about the beginnings of the St. Andrew's Foundation.
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References cited:

1.  From the L’Arche Community website at 
2. Harry Hamilton, personal communication, 11/25/2012.
3. Quote from “Misconceptions on the principle of normalisation,” Bank-Mikkelsen, Address to  
    IASSMD Conference, Washington, D.C., 1976, referenced in Wikipedia article on Normalization at  
    http://en.wikipedia.org/wiki/Normalisation_(people_with_disabilities)

Other internet references:







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