Showing posts with label Wyatt v. Stickney. Show all posts
Showing posts with label Wyatt v. Stickney. Show all posts

Wednesday, December 26, 2012

Wednesdays with Dorothy: Freedom to Shop

(This is part of a series. For Table of Contents go here)
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One of the buildings at Partlow State School (photo by Naaman Fletcher)



Finding Appropriate Care


At the time of the Wyatt v. Stickney case, there were “over 3,000 residents living in overcrowded and inhumane conditions who had no legal alternative.”(1) Many of those residents were rather high functioning mildly retarded people who were even used by the mental health system to help run the institution. As Dorothy has recounted, they were called upon to help with the care of many of the severely handicapped residents and were enlisted to do the washing, cleaning, and cooking alongside employees and always without pay. Those at the "Boy's Colony" did the agricultural work that brought in income to the institution.(2)  It was these residents who surely knew that they were being denied options in life that they wanted to take part in.

On the other hand there were the severely handicapped residents who were warehoused and abused at the hands of poorly trained employees supervising the “high-grade” residents who participated in the care of the “low-grade” residents. In those days, parents of severely handicapped children were routinely advised by medical professionals that institutional care was the best option for their children, not realizing the detrimental warehousing conditions of those very institutions.

When I was Program Director at the St. Andrew’s Foundation, part of my duties included gathering information about new residents coming into our group homes. I will never forget the conversations I had with parents, almost always mothers, about their adult children with developmental disabilities. On one occasion, a mother described how she had been assured by the doctor that Partlow was the right place for her eight-year-old son, and how she watched as a staff person took her son’s hand and lead him away on the day he was admitted. My own daughter was around five years old at the time. I thought of how I could not bear to think of placing her, with her normal coping skills in some institution away from home, yet so many who lacked those very skills, were routinely institutionalized “for their own good.” We cannot minimize the hardships faced by parents of children with developmental disabilities. As a society we must offer resources to help. We must not, however, resort to insufficient means of caring for those children and their families.


Adventures in Shopping


Dorothy Burdette loved to shop, perhaps more than any other activity. When talking about her experiences at Partlow State School in juxtaposition to her life outside the institution, shopping was often the big comparison in her mind. At Partlow there was no freedom to leave the campus, no freedom to make decisions, no freedom to shop. Here are some of Dorothy’s adventures in shopping when she was finally able to leave the institution.

Dorothy Burdette
“Robbie worked at the group home. He made me mad one time. He said, ‘You owe me a cup of coffee, and I gave you a ten dollar bill.’ I said, ‘I didn’t ask for no money from you Robbie and furthermore, I don’t owe you no coffee! You owe me some!’ And later on he did get me a cup of coffee.

“What happened was, he took me to get something for my birthday, and he wouldn’t let me get it. It made me mad with him.  It turned out I didn’t have enough money – I was ten dollars short. We ended up going to Woolworth’s and getting some coffee.”

 “[When I needed to go shopping] I used to go downtown by myself half the time. I remember one time I went with Jim when he worked there. I got some of them week day panties and some of those soup labels – they used to make them like what came on Campbell’s Soup cans- and I got some of them. Cathy said they were for little bitty young ‘uns and I didn’t have any sense getting things that were not big enough for me. She told me I didn’t know how to buy the right size. It made me mad, and I told her, she didn’t know what I didn’t have, and I’d get what I wanted to and it wasn’t none of her business.”

 “I liked to make my own decisions about what I bought. When I was at Partlow, we couldn’t go out shopping, and we couldn’t make decisions about the clothes we wore or the things we bought. For our clothes, they would order cloth for the sewing room, then they would sew it into clothes and give ‘em to us. They had different staff that would come in and sew.”

 “Once I was at the group home, I went several times to shop and Cathy would always get mad. She’d say, ‘You always go off and leave us – you don’t wait for us.’ I’d get my cart and away I’d go. She said, ‘Can’t nobody keep up with you, you don’t wait on nobody.’ Usually they would take about two or three of us at a time when we went out shopping. I always went with who I wanted to. I didn’t much care for Cathy, she had a hot temper.”
“I liked the food better [at the group home] that at Partlow, and I liked that I could go with the group home staff to do the grocery shopping.”

“I remember my first Christmas in Birmingham. In the group home, we would go out to do Christmas shopping and to look at all the Christmas lights.”

_________


References cited:

1. The Legacy of Wyatt , http://www.mncdd.org/parallels2/one/video/wyatt.html
2. Penley, Gary, Della Raye: A Girl Who Grew Up in Hell and Emerged Whole (2002). Pelican Publishing, p. 71.


Photographs:

  • The photo from Partlow State School was taken by Naaman Fletcher years after the institution was closed down. Naaman's photos are featured on his blog What's Left of Birmingham at http://leftbirmingham.blogspot.com/2011_12_01_archive.html .
  • The photo of Dorothy was taken about the time she left Partlow. It was one she kept on her dresser in her apartment.



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Wednesday, November 21, 2012

Wednesdays with Dorothy: Preparations for Leaving the Institution


(This is part of a series. For Table of Contents go here)
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Photo by Naaman Fletcher
In talking with Dorothy about life at Partlow State School, It sounded as though there were attempts in later years to enrich the lives of the residents through volunteer efforts.  It was the federal court, however, that mandated changes in the institution and insisted that residents be equipped for greater independence outside the institution. In the Wyatt v. Stickney case, United States District Judge Frank M. Johnson ruled that residents at Partlow State School were being denied their constitutional right to treatment. There was some stark and shocking eye-witness testimony entered in those court proceedings back in 1971. Here are a couple of examples:

“I think if you walk through Partlow, you can see. . . the effect – the people who begin to become involved in eccentric mannerisms, the rocking back and forth, peculiar behavior mechanisms, the people who sit in a semi-stupor in a place, without any activity, the people who slowly deteriorate and turn to the simple elements of human behavior .... We have ample documentation in this country that individuals who come to institutions and can walk stop walking, who come to institutions and can talk will stop talking, who come to institutions and can feed themselves will stop feeding themselves; in other words, in many other ways, a steady process of deterioration.”

“The food was slopped out unceremoniously by the working residents. There was a kind of a cake ... as part of the meal, and it was handed out by the working residents using their hands and dropping it on the trays. There were no knives or forks. Many of the residents ate with their hands ....”

                                           (The Yale Law Journal, Vol. 84: 1338, 1975 footnote, p 1350)

So it was that the landmark case in federal court would set the wheels in motion for Dorothy and many others like her to find a fuller life outside the institution. This is how Dorothy describes those transitional times:


Sponsors

At Partlow we couldn’t even go off the premises. It was that way for years and years until the Shriners – I think that’s what you call it – they started getting it together where we could go out and have more privileges than we did. Sometimes we didn’t have much privileges.  I had a case manager who used to take me up to the canteen and take me out for coffee and everything.

Partlow columns

I remember the first time I went out with somebody. I went out with another girl’s sponsor. We went to some place in town. We had lunch at this restaurant and the plates would be sent out on a conveyer belt. It went so fast you’d have to get you plate off or it would run off on the other end. I well remember that. Then after I come down here she wrote to me.

Sponsors wrote to you and got your packages out on Christmas or Thanksgiving; Easter or Valentines. They’d take you out sometime or sometime they would just send you cards.



Getting Us Ready to Leave Partlow

Partlow staircase
I went for a little while to rehab and that was how I got out. The day they said I could leave, I was so glad I didn’t know what to do. They sent me down to Thomasville to that Thomasville Resource Center.  I think I was down there a year and a half. 

It was alright, I lived in a house and then they moved me to another house with three more people. I stayed down there a long time.  I was there two or three months. They put me to live with an older couple. I didn’t want to stay with them and I ran away. In a day or so, they came and took me back to Thomasville. I had a job at a little old motor court. I had to change beds, and mop and sweep. They paid me about $10. That was the first time I got paid for doing work.

I went to a cooking class when I was in Thomasville, and I had to learn how to use a coin operated laundry when I first came to live in the group home [at St. Andrew’s Foundation in Birmingham].  Then I got to interview with Jim and Harry and I got to come to Birmingham.  The house I was supposed to move into caught fire, and that delayed me, then I had to wait another long time.

We had to get on a school bus when we went shopping. We would go about 12 miles to ride to the Delchamps grocery store. There was a restaurant called Delmars. We couldn’t go there unless somebody took us. I think I’ve really really been down the grist mill.

Inside an empty room at what was Partlow State School


_______
Work cited:

“The Wyatt Case: Implementation of a Judicial Decree Ordering Institutional Change,” The Yale Law Journal, Vol. 84: 1338, 1975.

About the Photographs:

The pictures above were taken by Naaman Fletcher on the premises of Partlow State School years after the institution was closed down. They are featured on his blog What's Left of Birmingham at http://leftbirmingham.blogspot.com/2011_12_01_archive.html .



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Wednesday, October 10, 2012

Wednesdays with Dorothy: Life in the Institution


(This is part of a series. For Table of Contents go here)
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The Frank M. Johnson Federal Buildingand U.S. Courthouse
 in Montgomery, Ala. (Library of Congress Photo)
1n 1971 when the court order came down in the Wyatt vs. Stickney case, change would reverberate, not just at Partlow State School and Bryce Hospital, but in mental health institutions across the country. United States District Judge Frank M. Johnson, Jr., of the Middle District of Alabama ruled that patients in all three state mental health institutions (Bryce Hospital, Partlow State School, and Searcy Hospital) were being denied their “constitutional right to treatment.” The court stated that there were three requisites to effective treatment:  "(1) a humane psychological and physical environment, (2) qualified staff in numbers sufficient to administer adequate treatment and (3) individualized treatment plans." (The Yale Law Journal) With the institution’s failure to meet these requisites, Partlow State School began the processes both of institutional reform and of de-institutionalization of many of its residents.

The St. Andrew’s Foundation was organized at St. Andrew’s Episcopal Church under the leadership of the Reverend Francis Walter of the Episcopal Diocese of Alabama. Organized in 1974, its purpose was to provide training in independent living for residents coming out of Partlow State School as a result of the federal court order.  The goal was to allow residents to live as independently as possible within the community. In the early days of it operation, much of the independent living training dealt with helping the residents to “unlearn” some of the institutional behaviors that had resulted from living at Partlow State School, behaviors that had been adaptive in an institution but not helpful or normal for life in the community.

In my conversations with Dorothy, I was able to see a little bit of what life was like inside the institution, how residents sometimes lived in conflict with one another and with staff, and how residents sometimes collaborated together to find some freedom of activity in spite of being under the watchful eye of hospital staff. I was surprised and amused to hear how residents managed to make their own butter in the days before homogenized milk.

Keeping Possessions Safe

"There was one girl, she would stay up at night. She loved to dip snuff. She would go into people’s packages and things and steal money. If she got a chance she would get a can of snuff. Every time they would catch her she would just scream her head off. I don’t remember stealing anything, but I probably did. I stole a few things after I was discharged [from Partlow].

"I never did get caught with ‘em. I was bad to get candy, now snuff – I never did care for snuff. One time I had a big jar of coffee that this girl gave to me for writing her letters for her to her grandmother. We had these old army lockers to keep things in, and they locked with the same key. This one girl stole my big jar of coffee and put her little jar in my locker. I caught her and I got that jar out and went and told her, “Give me my coffee. She started screaming and everything. The attendant came over and I said she stole my coffee. The attendant took it and put it in the locker room. We didn’t get it until we settled down. I let one of the attendants keep my coffee for me.

"I had a fit one time when I had a picture of Elvis Presley when he first started “Jail House Rock” It was a lady that give it to me. That old man, Mr. Hood Ball was his name, he took it and wouldn’t let me have it and I had a fit. They had to take me to the Main Girls’ Building. I wouldn’t even go back to the laundry because he took my picture of Elvis Presley.  He worked down there a long time, I reckon he retired.  He never did give that picture back – I don’t what happened to it.

"One time I had these rhinestone ear bobs. I was about 19 years old. I would wear those ear bobs and I mean I thought I was the cock of the walk."

Friendships and Peer relations

"There was a girl used to write my letters before I ever learned to write. She would write my letters to my legal guardian. 

"After I grew up I learned how to roll hair and pin-curl it. I used to roll this girl’s hair. We used to make hair rollers out of old snuff boxes and brown paper. We would get this old red crepe paper and use it for rough and lipstick. They used to wouldn’t let us primp up or nothin’. I mean they wouldn’t even allow us to dance with the boys until later on over the years. 

"If they caught you embroidering or crocheting they would take it up. I guess they did that because they were afraid we’d get mad and stick one another with the needles. I used to watch a girl tat with a tat and pearl. I don’t know how she did it. She would tat lace – I never could understand crochet either.

"There used to be a girl who would wake me up in the morning. I mean she’d get me up at 4:00 o’clock. She would wake me up to go to the bathroom with her. She’d want to kiss me and make love to me and I wouldn’t let her, and she would get so mad."  

Staff and Staff Relationships

"They used to be real mean, some of ‘em.  I remember when we would be a-laughing and talking. We weren’t supposed to be laughing and talking because they’d have us on silence. And if they caught you talking they’d make us stand on one foot with both hands up in the air. If you put your foot down you had to pick the other foot up and stand there that much longer.

"They didn’t like for us to talk. We used to slip around and talk.  They had four little round tables at each end of the hall and we would sit around them and talk.

"The most important people in my life were some of the attendants, and the most important one of them, her name was Aunt Lily Wilson. One Saturday morning we went to breakfast and she fell out of her chair with a heart attack and she died. I saw her when she fell out of the chair. That night I thought about her and I thought, “She’s with Jesus.” I don’t remember how old I was, but that’s what I was thinking. That night, when I went to sleep, I dreamed that I could see her. She was really good to us. I called her Aunt Lily because she was so sweet. She would always talk to me about Jesus.  She really taught me to love Jesus.

"There were some, there was an old attendant one time – I was talking and she told us to be quiet. For some reason she didn’t like me so well. She took me into the bathroom to duck me under the shower-bath. She used to take some of them and hold them under that water a good while. She couldn’t get me in there. She tried to put an old rag in my mouth and when she did I bit her on the hand. She went over there and told them she got dog-bit coming on duty. If I’d have told them, they’d have probably fired her. But I didn’t see nobody to tell. She was really, really mean.  Her mother worked there, too, but her mother wasn’t as hateful as she was.

"One time I went to the big dining room. I was doing something and a lady got on to me. She made me mad. We had these old tin cups. I threw my cup across the dining room, trying to hit her with it, and somebody told me I was just showing out. I said “Showing out, nothing! You shut up! I’m taking up for myself, I don’t care what you do!” I got sent back to the main building and I had to sit under a table until time to go to bed. There was a lady there named Jessie McCain, she was an old black nurse. She’d always make us sit under the table if we didn’t do what she told us to. Then I got to where I never did argue with folks. After I grew up I hardly ever did argue with nobody no more. I think I was about 24 or 25 [when I figured out I didn’t have to argue back]."

 “When the Cat is Away”

"We used to go into the bathroom at night and make coffee. We didn’t have a coffee maker; they wouldn’t let us have one. We would get clean rags and put the coffee in them. Then we’d hold it under the hot water from the sink and let it run into a glass. Then we would strain it and drink it. Sometimes we would get that instant coffee and go in the shower and make it with the hot tub water. It was real good if you had cream to go with it. Sometimes we would sneak the packets out, and sometime we would get the grounds out of the coffee maker in the dining room.

"We used to get that old red butter color, and they would give us some kind of stuff that looked like butter. Well, we would sneak out some cartons of milk and we would put the milk in a jar to churn the milk into butter from it. You’d have to shake it up and down a long time before it would turn to butter. Then we would take the butter out and mix that other stuff we had with it.  Somebody would always look out for the attendants, because if we got caught doing anything, they would always make us take it back to the dining room, or they would throw it out.

"I used to love churning butter with an old fashioned churn. We didn’t have a churn there, but my Uncle Will and Aunt Alma had a churn. Uncle Will was my mother’s brother. I used to churn with that when I was a little girl."

After School and Work Activities

"Sometimes we would go out into the yard, and sometimes we went out and sat on the benches.    If they caught us laughing or talking, they would make us stand on one foot and hold both hands up in the air. If we put our foot down, we had to stand there that much longer.  Sometimes they would make you stand in the corner, or put you in the closet and shut the door.

"They would make us go to the okra patch and we hated to go, or they’d make us go to the vegetable room to clean vegetables and we hated to go there, too. Me and this other girl got out one time then they caught us when we got back to the room. She made is go right back over there.

"They wouldn’t let us take a break until we got slap through. One time when I was workin’ in the vegetable room, I raked up a pile of turnip greens in the floor, sat down and urinated in ‘em and then I got up. I said, “That’s what you get for not letting me go to the bathroom.” We used to sneak and slip potatoes and lemons, and everything out – weenies and bread.  In the winter time, we would put the weenies on the radiator and roast ‘em and eat ‘em.  If the attendants caught us, they’d take ‘em all up.

"One time I took some meat patties out of the dining room. I had a muumuu dress with big pockets and I put those meat patties in my pockets. I got caught with them, and this lady told me to go back to the dining room and put those meat patties back on the table. I thought, 'My, my. You can’t have nothin’ around here.'"

___________

Reference cited:
"The Wyatt Case: Implementation of a Judicial Decree Ordering Institutional Change," The Yale Law Journal, Vol. 84: 1338, 1975.




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Wednesday, August 1, 2012

Wednesdays with Dorothy: How It All Began

(This is part of a series. For Table of Contents go here)
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Charlie and Dorothy at the dinner table

I first met Dorothy Burdette in 1987 when I was Program Director for the St. Andrew’s Foundation on Birmingham’s Southside. She had come to the St. Andrew’s Foundation Group Homes in 1975 after having spent 35 years being institutionalized at Partlow State School. By 1980, she was living in her own apartment, having achieved a long-held dream to live on her own. She maintained that dream for the rest of her life, with help from her friends.

When I was New to the Neighborhood

When I first began at St. Andrew’s Foundation in 1984, my duties were primarily in one of the group homes where eight residents lived. Many of our residents had come from Partlow State School which had come under court order in 1974 to de-institutionalize as a result of the Wyatt v. Stickney law suit. One of the rulings in that case was that Partlow State School and Hospital was "warehousing" its residents and was "wholly incapable of furnishing [habilitation] to the mentally retarded and [was] conducive only to the deterioration and the debilitation of the residents."

I learned a lot as I came to know the group home residents where I worked – all of whom had mental retardation as their primary diagnosis (Developmental Disabilities is the general term now used in diagnosis).  The people I worked with would sometimes talk about what life was like in the state institution. As I would hear some of those guys talk, I would think to myself, “Someone should be writing this stuff down!” It was when I was promoted to Program Director with a wider range of responsibilities that I began my interactions with Dorothy. It was there that I began to hear her story, and there that I began a friendship that would last for years to come.

Even though she had graduated from our group homes and our supervised living apartments, Dorothy Faye Burdette, or Dorothy Faye as we sometimes called her, still found a supportive community among the St. Andrew’s Foundation staff. That is how Ms. Burdette and I met and became friends. She would come by the office from time to time for help figuring out her bills, or with an official letter from some government agency that she needed help understanding. Often we would meet for lunch and then travel to the Food Stamp office so she could pick up her monthly food stamp allotment.

In addition to maintaining a community of support in our offices, Ms. Burdette found similarly supportive communities at her church and among her neighborhood friends. She treasured having her own apartment, and she also had a determination to maintain friendships.  Remarkably, she was able to continue living in the apartment that she moved into over 30 years ago until her death this year at the age of 82. Much of her success was due to her ability to garner her own support system that included friends, church members, and social workers.

Staying in Touch

I moved on from St. Andrew’s Foundation in 1996 to work in the field of healthcare as a registered nurse. Dorothy Burdette and I continued to stay connected. Sometimes I would meet with her for lunch, sometimes she would call me up on the telephone. Sometimes my wife and I would invite her over to our house for a holiday meal. Often when we would meet, she would have a few things she wanted me to help her with: shopping for groceries, getting her bills paid, balancing her checkbook, fixing something that came loose in her apartment.

Sometimes when we met, Dorothy would mention things about her life growing up, or about life in the institution and I would again say to myself, “Someone should write this down.” Finally I decided that I needed to start writing some things down. I thought Dorothy Burdette had an important story to tell, so I asked her if she would be willing for me to record the story of her life in her own words.  We met weekly, usually in her living room, and I ended up with around nine hours of conversation. I would ask her questions about her experiences, and she would provide many fascinating details. I eventually had the story of Dorothy Burdette’s life in her own words which I was able to put into a book. I'll never forget the look on her face when I placed her own book into her hands.

I would like to share on my blog the remarkable life of my friend who made it through incredible poverty, hardship, abuse and institutionalization to find a life of her own with friends to support her. I’m going to call these posts “Wednesdays with Dorothy,” because I hope to be able to get a post each Wednesday to tell you a little more of her life each week.


________________________


[Note: The group homes and supervised apartments formerly known as the St. Andrew's Foundation are now under the auspices of The ARC of Jefferson County]




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